Doctor,
my eyes
Tell me what is wrong
Was I unwise to leave them open for so long
Tell me what is wrong
Was I unwise to leave them open for so long
Jackson
Browne
I've
been looking through the Book of Mainenites lately, particularly the
Book of Jim. This is because the number of potential “Why me's”
continues to grow. I don't think I would say we have reached Job
numbers yet, but if I got caught out in a shower of frogs without an
umbrella, I wouldn't be surprised.
Before
you have a fit... I know the rain of frogs wasn't Job's in the Bible,
but maybe there is a similar incident in the Book of Mainenites, I
haven't read the whole thing.
You
may wonder why I would make fun over something as important as my
eyesight. Well, what would you rather I do? Making fun of serious
situations is what I do...it's how I cope.
Anyway,
my eyes have been bothering me constantly the last few weeks, with
the situation worsening as the days go by. For lack of a medical
term, they keep producing gunk, which obscures my vision. It is
constant. All day long, every day. Once in a while, the gunk hardens
and I need to take care not to scratch my eye or the surrounding
skin.
My
Idaho friend Peters (currently his real name) tells me he has an eye
condition where he feels like he's looking through some kind of gell
all the time. He quit playing fast pitch softball when he struck out
on three pitches that sounded fast.
Mine
isn't quite like that, but my vision is blurred most of the time and
I have to keep clearing gunk, wet and/or dry, out of my eyes.
As
is often the case, it's hard for my doctors to pin down what's
causing this. The best guess is that it's a side effect of something
that I'm taking.
If
that's the case, once again we face the dilemma of whether or not the
cure is worth it. We haven't really had a report on my kappa light
chain proteins for a while. We'll make sure the necessary blood is
taken the next time we visit the clinic, which is in just a couple of
days. We can make a decision from there.
I
know my friend Peters has been brave with a problem that, in this
case, is obviously greater than mine. But, I don't want my health
plan to come down to a case of a double dog dare. He has what he has
and is dealing with it as he does. I have what I have and Im dealing
with it as I does, and I'll be in Scotland afore him, but how much of
it I'll be able to see would be in some doubt.
Look,
as far as we know, this isn't threatening my sight. It is merely
another inconvenience in a life that has become full of them.
On
the other side of this particular moon... I seem to have stopped
throwing up. I still feel nauseous much of the time, but vomiting
seems to have taken a holiday. That's very good.
Buy
on the other, other side, I feel a lot of bone pain. Many of my bones
register a five on the scale I have to report at each visit. Still,
if I touch almost any of my main bones, the pain shoots up to a 10
and beyond. I probably need to have a full body bone scan done, which
involves about 26 X-rays.
My
read on that is that my medical team is reluctant to do it. I suppose
they don't see much in the way of assistance coming out of it. If the
myeloma has done damage, and the scan shows that, well... what are we
supposed to do about it. The process would seem to have little value
in terms of improving how I feel.
But,
here's the thing. I don't care. I don't care if we can't do anything
about the damage that it's done. I want to know if I have lesions, or
holes, or cracks, or nothing affecting my bones. I haven't made a big
deal out of it yet, but I'm going to and I know the doctors will give
the go ahead for the scan. They are absolutely concerned with my
mental well being, just as much as my physical situation.
So,
stay tuned... again. The eyes may have it, but what does that mean,
exactly.
There are a variety of versions of
the story that gives this blog its name. The pony is the constant in
all of them. A man is on his way to a party when he comes across a
young boy shoveling ass over tea kettle at an enormous mountain of
manure. The man asks the child if he wouldn't rather go with him to
the party than shovel all that poop. The kid says, “No way man.
With all that poop... there must be a pony in there somewhere
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